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MyVHL: Patient Natural History Study
This is a registry for patients with VHL and related disorders. It’s completely free for patients to participate. All information entered is private, confidential and secure. No identifying information will ever be shared.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?
For Patients & Caregivers
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.
Ready to join us?
Please create an account and provide consent to participate in the study.